This is the inaugural year for this event, featuring speakers, educational vendors, kids activities, a continental breakfast, door prizes and more. Anyone affected by epilepsy is welcome to attend.
The website will open December 1. More info coming soon!
Watch here for more information about our 2nd annual Epilepsy Awareness Day at Kings Island— and this year, Kid’s Crew members are free!
Yes, we’re doing it AGAIN! 2018 was the biggest event we’ve ever done- and in 2019 we plan to top it. Come join us for a muddy good time at our 29th annual event. The website www.ohiomud.org will open on April 1, 2019 for registration. For sponsorship information, call us at 937-233-2500.
Join us for this Facebook Live presentation by Mark Callow, MD, an epilepsy specialist at the UC Health Epilepsy Center.
A purple glow- inside and outside, all around the city. The night of our second GloGala, that’s what you’ll see. Join us for this magical evening of dinner, dancing and a silent auction and watch Dayton light up purple in support of everyone affected by epilepsy. Benefit the Epilepsy Foundation Ohio. Ticket information coming soon!
For information about sponsoring this event, call us at 937-233-2500.
In about 30-40% of people with epilepsy, medications do not control their seizures. Other treatment options used to help control seizures include surgery, dietary therapy, and neurostimulation devices.
Neurostimulation devices vary in how they are placed in the body and the way they work. Join us for a webinar on Tuesday, November 6, 2018, to learn about neurostimulation as a treatment for drug resistant epilepsy. Hear from people who have personal experience with neurostimulation as a therapy to help control their seizures. We will review:
Different types of neurostimulation devices,
How is neurostimulation used to help control seizures?
Who may be helped by a neurostimulation device?
The effectiveness of neurostimulation devices
“Neurostimulation in the Treatment of Drug Resistant Epilepsy”
Date: Tuesday, November 6, 2018
Time: 8:00 to 9:00 p.m. ET
Elaine Kiriakopoulos MD, MSc
Director Health Communications and Engagement
Epilepsy Foundation
Lawrence Hirsch MD
Professor of Neurology
Chief, Division of Epilepsy and EEG
Co-Director, Yale Comprehensive Epilepsy Center
Co-Director, Critical Care EEG Monitoring Program
Yale School of Medicine
This free program is for parents of school age children. We’ll discuss your legal rights regarding Individual Education Plans (IEPs), 504 plans and other options to help you child succeed in school. There will be an additional brief presentation by the Epilepsy Foundation Ohio to outline our programs and service for the community.
Free, but registration is required.
Speakers:
Robyn Traywick J.D.,R.N. and Joseph K Warden
Attorneys at Law
Advocates for Basic Legal Equality, Inc.
Light breakfast included
There will be signs at the site to direct you to the correct building.
Free parking
Anyone with a brain can get epilepsy, so let’s use our brains to end epilepsy! Celebrate Epilepsy Awareness Month by having a Purple Pumpkin Party- wear purple- or share your story on social media!
Epilepsy by the Numbers
• 3.4 million people and their families are affected by epilepsy in the United States.
• 65 million people worldwide are living with epilepsy.
• 1 in 26 people will be diagnosed with epilepsy during their lifetime.
• 1 in 10 people will have a seizure during their lifetime.
• 150,000 new cases of epilepsy occur each year in the U.S.
• 470,000 children have epilepsy
• 336,000 children have at least one seizure annually
• 30 percent of people with epilepsy do not gain full control of their seizures and continue to struggle day-to-day with the threat of imminent seizures
• 32 percent of adults with epilepsy can’t work vs. 7 percent of those without epilepsy
• 29 percent of adults with epilepsy can’t use a car or public transit to get places vs. 8 percent without epilepsy
• 21 percent of adults with epilepsy can’t pay for medicines vs. 9 percent without epilepsy
• $2 per person affected by epilepsy is the estimated amount of federal funding for epilepsy research — nowhere near the federal funding for other neurological disorders which range from $65 to $1,147 per person affected.
Epilepsy is a Neurological Disorder
• Epilepsy is a disorder of the brain with different causes, such as head trauma, genetics, inflammation, infection, brain malformation, stroke, birth injury and more.
• Epilepsy is the underlying tendency of the brain to produce sudden abnormal bursts of electrical energy that disrupt other brain functions and cause seizures.
• Seizures come from the brain and are symptoms of epilepsy. Any brain can have a seizure.
• There are different types of seizures. Some are convulsive seizures and some are non-convulsive and can be as brief as a staring spell or a myoclonic jerk.
• Many people can find seizure control with medication(s), dietary therapies, surgical treatments, lifestyle changes and/or implanted devices or a combination of these.
• The impact of seizures and epilepsy can be significant in children and adults.
• Often children and teens with epilepsy find themselves feeling isolated and misunderstood; they may lose friends, may not be invited to birthday parties or may be ostracized or even teased or bullied at school.
• Some people with epilepsy hide their disorder, which can lead to feelings of isolation, helplessness and even depression.
• Adults with epilepsy oftentimes experience changes in their quality of life, such as mobility, relationships, employment, and social interactions. Epilepsy Foundation Impact by the Numbers
• $65 million has been invested in epilepsy research since 1968.
• 90 different research projects have been funded since 2006.
• 15 research grants were awarded in 2017 totaling more than $1 million.
• 508,534 school, community and first responder personnel trained in epilepsy recognition and seizure first aid since 2011 under CDC-funded programs.
• 108,522 people have been assisted through the 24/7 Helpline since 2014 when it started.
• 26 physicians had their epilepsy fellowship specialty training sponsored since 2006.
• 50 local chapters and affiliates make up the broad Epilepsy Foundation’s nationwide network.
While not everyone can get complete seizure control, there are options beyond medicines that may help. Here is your chance to hear about options when medicines don’t work.
Join us for a webinar on Wednesday, October 24, 2018, to learn about drug resistant epilepsy and the diagnostic tests used to help tell if a person can be helped by epilepsy surgery.
Moderated by Dr. Elaine Kiriakopoulos, director of health communications and engagement for the Epilepsy Foundation, our speakers will discuss
What is “drug resistant epilepsy”? How do I know if that means me?
What can I do if medicines don’t work? Is there something else?
What tests will be done to see if surgery or a device could help me?
What are the steps in the journey to epilepsy surgery?
What emotional and social challenges should I consider and prepare for?
How do I manage expectations and find support?
"When Medications Fail: Presurgical Evaluation in Drug Resistant Epilepsy"
Date: October 24, 2018
Time: 8:00 to 9:00 p.m. ET
David Ficker MD, FAAN
Professor of Neurology
Gardener Neurosciences Institute
University of Cincinnati
Mimi Callanan RN, MSN, ACNS-BC
Epilepsy Clinical Nurse Specialist
Comprehensive Epilepsy Center
Stanford University
Studio E is free, 6-week program for those living with epilepsy, age 4 and older. Registration is required. It offers a safe and creative outlet for adults and children. Studio E participants create art using a variety of mediums, such as paints, sketches, collages and sculpture. Sessions are led by a professional, promoting freedom of expression and sharing. Previous art experience or “perceived” talent is not necessary. Everyone is welcome and encouraged to explore individual creativity. Children under 16 must be accompanied by an adult during the class. All supplies are included. Please note we skip Halloween day.
Click on link for registration information
More info coming.. watch this space.
Poker Run, Corn Hole Tournament and Hog Roast
5th Annual Poker Run
Registration 8:30-10:30 am
Kickstands up 11:30 am
$20 single/ $25 double (includes entry to Hog Roast
Pay out top 3 hands
Corn Hole Tournament
Registration 2 pm
Tournament starts at 3 pm
$40/team, includes entry to HOg Roast
Pay out to 1st, 2nd and 3rd places
32 teams mas, non-pro, no bust, double elimination
6th Annual Hog Roast
4 pm $10/person, children under 5 free
Raffles, 50/50, Door prizes and Cash bar
Live entertainment by Ryan Peters & The Locals
Tents and campers welcome- $10 primitive camping set-up Friday evening
More info to come... watch this space!
We are taking over all three Milanos locations on Wednesday, July 20 to promote the Mudpocalypse: Mud Volleyball for Epilepsy. Take the flayer and we receive 20% of your purchase as a donation from Milanos. We will have volunteers at all three locations for dinner (and at Brown St for lunch) to help you sign up for mud volleyball. Come join us and get some great grub for a great cause.
This is good for dine in, carry out or delivery- but you have to show the flyer!
If you haven’t registered for mud volleyball, do it now. Go to www.daytonmud.com.
Join us for this fun filled day and help those living with epilepsy. First, we'll have our annual walk at a new location- 5th3rd Field! Register to walk- or sponsor the event.
More info about how to participate in the walk coming soon!
If you'd like to be a walk sponsor, call us at 937-233-2500.
Studio E is an art therapy program to help people living with epilepsy express themselves and manage stress or challenges in group art therapy setting.
This program is 6 weeks, every Wednesday, beginning March 14, 2018 ending April 18, 2018 from 6:30-7:30 pm.
The program is free, but registration is required.
Adults or children living with epilepsy, age 4 or older, are welcome to attend. Those age 4-17 must have a guardian present.
Come have a great time at Purse Bingo!
$20 at the door or tickets are available at the Sidney Daily News
Doors open at 2 pm
All proceeds benefit the Epilepsy Foundation Greater Dayton Region
Food * Vendors * Door Prizes * Silent Auction
This group is for the parents of children who have epilepsy, regardless of the age of the child. No reservations are required, just stop in. No childcare provided.
Weather cancellations will be on our Facebook page.
This group is for women who live with epilepsy or a seizure disorder. It is free, and no reservations are needed, just stop in.
Weather cancellations will be on our Facebook page.
This group serves young adults, age 18 to 25.
The group will meet the 3rd Tuesday of each week.
At Ray of Light Counseling
210 W. National Rd.
Vandalia, Ohio 45377
If you have any questions about this group, call us at 937-233-2500.
This group will meet on the 3rd Tuesday of each month.
Group for young adults, age 18-25, who live with epilepsy or a seizure disorder.
No reservations needed, just drop in.
This group is for the parents of children who have epilepsy, regardless of the age of the child. No reservations are required, just stop in. No childcare provided.
Weather cancellations will be on our Facebook page.
This group is for women who live with epilepsy or a seizure disorder. It is free, and no reservations are needed, just stop in.
Weather cancellations will be on our Facebook page.
Studio E is an art therapy program to help people living with epilepsy express themselves and manage stress or challenges in group art therapy setting.
The program is free, but registration is required.
Who can come: Anyone living with epilepsy
When: Wednesdays, Sept. 27, Oct. 4, 11, 18, 25 and Nov. 1 from 6:30-7:30 pm
Studio E is an art therapy program to help people living with epilepsy express themselves and manage stress or challenges in group art therapy setting.
The program is free, but registration is required.
Who can come: Anyone living with epilepsy
When: Wednesdays, Sept. 27, Oct. 4, 11, 18, 25 and Nov. 1 from 6:30-7:30 pm
Studio E is an art therapy program to help people living with epilepsy express themselves and manage stress or challenges in group art therapy setting.
The program is free, but registration is required.
Who can come: Anyone living with epilepsy
When: Wednesdays, Sept. 27, Oct. 4, 11, 18, 25 and Nov. 1 from 6:30-7:30 pm
This group will meet on the 3rd Tuesday of each month.
Group for young adults, age 18-25, who live with epilepsy or a seizure disorder.
No reservations needed, just drop in.
Studio E is an art therapy program to help people living with epilepsy express themselves and manage stress or challenges in group art therapy setting.
The program is free, but registration is required.
Who can come: Anyone living with epilepsy
When: Wednesdays, Sept. 27, Oct. 4, 11, 18, 25 and Nov. 1 from 6:30-7:30 pm
This group is for the parents of children who have epilepsy, regardless of the age of the child. No reservations are required, just stop in. No childcare provided.
Weather cancellations will be on our Facebook page.
Shop till you drop for the Epilepsy Foundation! 10% of every purchase will benefit the Foundation. If you shop earlier in the day, tell the store when you check out to credit your purchase to this event.
We're going to have a drawing for a $100 Talbots gift card at the end of the evening for everyone who attends.
Can't make it to the store or live out of town. You can make a phone purchase that will count for the event by calling 937-299-7101. Make sure you tell them it is for the Epilepsy Foundation event. They will ship the purchase.
By the UC Health Epilepsy Center, Gardner Neuroscience Institute
Ask the experts at this free symposium for the community
Saturday, November 11
8:30 am to 12:30 pm
To register: http://uchealth.com/events/epilepsy2017/ or call 513-558-5440
Agenda Items:
New developments in diagnosis and treatment, new medications, medical marijuana, mood and stress, when to consider surgery and a physician panel to answer your questions
