Maci and Heather Byers, the Ohio 2018 TSU team.

Maci and Heather Byers, the Ohio 2018 TSU team.

Teen Speak Up 2019

Nominations now open! Please return nomination forms to Epilepsy Foundation Ohio at by December 12, 2018.

Each year, the Epilepsy Foundation hosts Teens Speak Up (TSU) in Washington DC. A parent/teen team from Ohio will be chosen to attend to represent the state to attend an Advocacy Training, then meet with state representatives and Senators to discuss epilepsy-related issues.

The 2019 event will be Sunday, April 28 through Tuesday, April 30, 2019. All expenses are paid for the parent/teen team to attend the program.

To be eligible you must complete and submit a nomination form and return it to our office by December 12, 2018. Nominees must be 13-17 years old as of 4/28/2019 and at least in middle school. Ohio nominees must be residents of Ohio as of April 28, 2019. The teen must have been diagnosed with epilepsy or a seizure disorder and currently be receiving treatment.

The selection committee will consider various factors when reviewing TSU nominations to ensure a diverse representation including:

o gender, race, ethnicity, nationality, and geographic location;

o advocacy experience at the state and/or federal levels;

o involvement with a local office’s community outreach initiatives;

o spectrum of epilepsy and types of seizures;

• The committee seeks teens who have not had the opportunity to participate in TSU previously. If a TSU teen who has participated previously would like to return, it is recommended, in most cases, that s/he be nominated as an Ambassador.

• It is encouraged, but not required, to select TSU participants that fall into the congressional district of a House Appropriations Committee member. Current House Appropriations Committee membership can be viewed here, though the Committee’s membership is subject to significant change due to the 2018 mid-terms.

All applications received by the deadline will be reviewed and selected participants will be notified of their acceptance into the program in January 2019. All participants selected are required to sign a contract committing to attending the full program and to participating in the Year of Service.