The goal in epilepsy care is to control seizures. Unfortunately, not everyone can reach that goal. One way to help you and your healthcare team better control you or your child’s epilepsy is to track your seizures.
Knowing what happens during a seizure and how often they occur are two important seizure details. And we’re learned many people who have epilepsy have seizures they don’t know they’ve had.
Some advantages to seizure tracking are:
· Helping figure out what type of seizures you (or your child) have
· Helping your care team learn what medicines or other treatments may work best for you
· Track what side effects you may have from medicines and help your doctor understand how you are tolerating medications
· See if side effects get better over time or when a dose is changed
· Learn your seizure triggers so you can learn to better control your seizures. This includes factors such as not sleeping well, missing medication, stress or being sick with a fever.
Share Your Diary
When you make your next appointment with your neurologist or epileptologist, tell the person you talk to on the phone that you need extra time to show the doctor your seizure diary and talk about it. Take the diary with you to your appointment. This is an extremely valuable tool for your care team to work with you to improve your control.
To track your seizures, you may want to use a seizure diary. Seizure diaries can be online or written down systems to help you keep track of different factors to understand your epilepsy better. Some seizure diaries you can use are are below. Click on any tool to be linked to more information.
Created 6/13/19 Using info from epilepsy.com